There is hope in knowing you are not alone. I know this from experience as a mother of two boys in the autism spectrum, another with ADHD, and a daughter with Wilson's Disease.
Friday, April 16, 2021
I have not posted in a very long time. So much has happened that I truly do not know where to begin.
First of all, my daughter (the one who inspired me to start this blog), is now a liver transplant miracle. She received a new liver on February 5, 2020. It was right in the midst of all the COVID Pandemic. She had to stay in the hospital for two months due to kidney failure and other complications related to her surgery. We almost lost her on numerous occassion, and she almost ended up needing a kidney transplant. I feel it was a miracle that her kidneys were able to heal enough for her to carry on without a new kidney. She had to have dialysis for weeks, and her doctors were not optimistic. However, I held on to the faith that she would overcome it, and she did.
Nothing can prepare you for an obstacle like that. We made friends along the way at the Children's Hospital who did not have such happy endings. One of my daughter's neighbors in the SICU was fighting liver cancer, and she passed away recently after a long year! She was only 10 years old. We will forever remember her sweet angelic face.
My biggest challenge right now is not hovering and giving my children space. It is so hard not to be overprotective. However, my children are no longer young kids anymore. I have a 24 year-old, a 20 year-old, and 18 year-old, and 15 year-old. Trust me when I say that the years pass by in a blink of an eye! This is especially true when you are a parent of exceptional children. When you are going through all of the trials and tough times, it is hard to appreciate that these moments will pass by. In the moment, you are caught up in just trying to survive. It is very humbling.
If I could go back in time, I would only change one thing. I would not have introduced the computer to my oldest at such a young age. He was only three and was a genius. I thought I was doing him a favor by helping getting ahead. However, it created some challenges that I feel he faces even to this day. Another thing I would change is how tough I was on myself. I would have homeschooled all my children sooner. I would have noticed that they were bullied in middle school sooner. I also would have advocated more for them at church.
Parenting is definitely not easy. However, it is so rewarding! I am so thankful for each of my children and all they have taught me. I cannot imagine my life without them. One day, I hope they will look back on their childhood years and realize how much they were loved and appreciated. Each of them is a gem.
Subscribe to:
Posts (Atom)