Many of you are familiar with the parable of The Ten Virgins. I have been thinking about that a lot lately. Maybe it's because of the sign of the times? Maybe it's because in many ways I don't feel ready? Either way, I think that we need to make sure that we all have plenty of oil in our lamps because the future is unsure right now. With that in mind, I think it's important that we also prepare our children. This post is going to discuss that very topic.
The first thing I think of is spiritual preparation. Not only does this include religion which is very important, but also being the kind of individual who can see beyond themselves and today. Our family attends church regularly and that helps so much in ways we can't even see right now. I know how hard it is.... believe me... to get up early and get kids ready to go to church each Sunday. However, I can definitely tell the difference when we get home. I can definitely feel the spirit and the following week is so much better. Service is a way to teach your children compassion and many other life lessons. We encourage our children to do service for others (including family members). In fact, this is a huge part of our religion and so I am thankful for that. Our oldest pays tithing on money he earns and that is such a big sacrifice for someone who doesn't make very much. He also donates money to organizations such as Unicef. The scouting program is also a big part of my boys' life. My oldest is about to become a Life Scout and my #2 is a Cub Scout. They have learned self-reliance as well as leadership skills that they will take with them throughout their lives.
The next thing that is important to teach our children is self-worth. When a child knows that he is loved then he is less likely to look for it in the wrong places. I see this happen time and time again. There are so many children who start doing drugs or get caught up in trying to do what is "popular" and it only leads them down the wrong path. I just pray that I am doing a good job teaching all of my children that I love them and that they have a Heavenly Father who also loves them very much.
Another thing that is important in preparing for the future is teaching children about the value of money and the value of work. There are so many children who are going to grow up and have the shock of their lives when they leave home and have to enter the work force. They are given everything without having to earn it and that sense of entitlement is what REALLY irks me about some young adults today. My children don't get an "allowance" because we have told them that there are certain things we do because we are part of the family. However, I give them opportunities to earn money all the time. My oldest is old enough to babysit and we pay him to help us out when we need it. I think it's important that he know we don't take him for granted and this ensures that he doesn't feel used. Giving children responsibilities, no matter how small they may seem, will teach them about the value of work and give them a feeling of belonging. That's so important.
In our family we value education. The best gift you can give your child is a good education. However, learning does NOT start and end in school. It should be a life-long process that begins in the home and continues on throughout your lifetime. There are so many things we take for granted that we learned through life experiences. It's up to us, parents, to teach our children these important lessons. Our children do not have some of the same opportunities we had such as being able to roam the neighborhood in safety or ride their bikes to the nearby store to get 5 cent candy. We need to teach our children about sex before they learn it from unreliable sources. Also, it's important to teach our children to have goals and how to achieve those goals. Receiving an education should be a top priority.
Teaching self-reliance is so important.... especially in times like these. We have no idea what the future holds and how the economy will be when our children grow up. However, if we teach our children how to mend clothes instead of buying new ones, or how to change the oil or a tire, or how to cook from scratch... those are valuable lessons that they can take with them and use if they need to. One day my boys will be going on missions for the church and I hope that they know how to do their own laundry, cook for themselves, and how to scrub a toilet. It's amazing how many grown men do not know how to do these things.
The last thing I want to discuss is kind of hard for me to even think about, but it's a reality. One day I won't be around anymore and I am hoping that it won't be for a very long time. However, one thing I have learned is that nothing in life is certain. We need to prepare OURSELVES spiritually, financially, and temporally for when that time comes. If you haven't already, make sure to prepare a good will. Make sure you have guardians for your children in case the unthinkable should happen to you and your spouse. Try to stay out of debt and save where you can. Make sure you have 72 hour kits for each of your family members. If you are able, follow the counsel to have a year's supply of food. All these things will ensure that no matter what happens, everything will be okay.
Let's not wait until it's too late. We all take it for granted that we live in such a peaceful environment. We have no idea of the wars that are going on around us in the world. We are blinded to the famine and hunger that exists. However, all this could change in an instant. We have heard many people say that things are going to get worse before they get better. We need to listen up!!
****************************
Those who are prepared don't
need to fear.
****************************
Wednesday, May 6, 2009
Friday, May 1, 2009
The Swine Flu...I'm ready, Are you?
Okay....some of you are going to think I am crazy... but I am going to jump on the bandwagon. First of all, I am so glad that they finally decided to change the name to Influenza A type H1N1. It was so misleading and I am sure it has hurt the pork industry. This flu has NOTHING to do with pigs giving it to people. The only reason they named it the "Swine Flu" is because genetically it has swine genetic material (among others). That's it! I thought I would post some good information for you all to think about and even a link that shows where the confirmed cases are in the world (very interesting). Secondly, I know that for some reason it seems to be more prevalent in Mexico right now, but that doesn't mean you need to stop eating at Mexican Restaurants. That's absurd!
I want to start off by saying that this "new virus" is actually Influenza Type A (which is the one my daughter got this past winter). The reason it's making the headlines is because it's a new strain of it. As many of you know, new strains of influenza make it into the U.S. every year and that is why they have to change the Flu Shot to keep up with it. Of course, it doesn't always work. (We won't get started on that discussion right now.) So.... basically we should ALL treat this like we would the Flu. We don't need to be getting all worked up about the word "pandemic" because that just makes it sound like that couldn't happen with any other Flu... it can!
The biggest defense against the Flu is hand washing and covering your mouth when you sneeze. I am so tired of people just using hand sanitizer. That's okay if you have no other choice, but washing your hands really well with soap is the better choice. The next thing you need to do is STAY HOME if you're sick! Don't send your child to school on Tylenol (I know we all have done it in the past... don't pretend you haven't). Now is definitely not the time to do that. They have already reported over 400 schools closing around the United States alone. (I am so glad we are near the end of the school year around here.)
The following is the tracker for the Flu and you can check on the entire world. It's very interesting.
http://maps.google.com/maps/ms?ie=UTF8&hl=en&t=p&msa=0&msid=106484775090296685271.0004681a37b713f6b5950&ll=32.639375,-110.390625&spn=15.738151,25.488281&z=5
Okay... so now on to the vaccine issue at stake here.... I found some really good information from the Associated Press online concerning this topic. I normally would post the link, but the information is just too good that I MUST share it with you all:
*****************************************
WHO will take vaccine gamble with swine flu
By MARIA CHENG – 2 hours ago
LONDON (AP) — When World Health Organization officials ask vaccine manufacturers to start producing vaccine to fight swine flu in a few weeks, they will be taking a calculated risk.
Flu vaccine companies can only make one vaccine at a time: seasonal flu vaccine or pandemic vaccine. Production takes months and it is impossible to switch halfway through if health officials make a mistake.
While some countries like the United States may be better prepared than others — American officials say production for next year's vaccine batch is so advanced they're nearly finished — the situation for many other countries is unknown.
About 70 percent of the world's flu vaccines are made in Europe, and WHO is trying to figure out how many doses of seasonal flu vaccine remain worldwide before asking vaccine manufacturers to start pumping out pandemic vaccine instead.
"It's a big decision...We've never done this before," said Marie-Paule Kieny, director of WHO's Initiative for Vaccine Research.
Kieny said the decision would be like guessing which vaccine the world will need most, but that WHO would try to hedge its bets by tallying existing seasonal flu vaccine stocks.
"We are gambling whether or not we will have enough seasonal vaccine, but it will not be an 'either-or' situation," she said.
Vaccine makers can make limited amounts of both seasonal flu vaccine and pandemic vaccine — though not at the same time — but they cannot make massive quantities of both because that exceeds capacity.
The impending decision to make pandemic vaccine will also complicate matters for countries in the southern hemisphere, where the flu season is just starting.
WHO usually makes recommendations about which seasonal flu strains should go into next year's southern hemisphere flu vaccine in September. But if vaccine manufacturers are already making pandemic vaccine in the fall, that will mean fewer doses of flu vaccine for people in the southern hemisphere.
Regular flu kills between 250,000 to 500,000 people worldwide every year. So far, swine flu appears relatively mild, except in Mexico. Until experts know how contagious and deadly the virus is, they won't know how many people actually need to be vaccinated. If it remains mild, it's possible many people won't need a shot.
But if swine flu evolves into a more deadly strain, more shots may be needed to protect wider swathes of the population. Another possible complication is that the pandemic vaccine will be made using the strain available now; whether that will work if the virus mutates isn't certain.
At the moment, WHO has a bit of breathing space. The key component for the pandemic vaccine, the "seed stock" from the swine flu virus, will not be available for a few weeks.
WHO has already put major vaccine makers on alert they may be asked to switch to making pandemic vaccine soon. According to Chris Viehbacher, chief executive of Sanofi-Aventis, Europe's biggest vaccine maker, his scientists are "working around the clock" on preparations for making a swine flu vaccine for when WHO comes calling.
But they too are waiting for more information. "It is premature to forecast how many doses of swine flu vaccine we could produce," Viehbacher said, noting the company needs to see how much antigen, the active ingredient in a vaccine, is required for each shot. If all goes well, the first doses should be available several months after production begins.
In the U.S., the government hasn't yet decided what to order. "It would all depend on how the outbreaks and the emergency unfolds," said Dr. Ruben Donis of the Centers for Disease Control and Prevention, who is heading the U.S.' vaccine work.
Vaccine makers have a few options when it comes to making pandemic vaccine. They could add the pandemic strain to the regular vaccine, but adding that extra strain reduces the number of shots you can make. Manufacturers might also use adjuvants, components used to stretch a vaccine's active ingredient.
Recent work on H5N1 vaccines, the bird flu strain many thought would ignite the next pandemic, may also help. John Treanor, a vaccines expert at the University of Rochester said that adjuvants developed during H5N1 research may come in handy now.
He said public health officials were indeed facing a vaccine dilemma. "There is only a certain amount of capacity for vaccine manufacturing," he said. "One has to make some well-reasoned choices, sometimes based on incomplete information."
****************************************
Where do I begin? I can't do it right now. I will have to write about this article at a later date because there are just too many issues at stake here. Plus, I want the time for it to sink in.
****************************************
I want to start off by saying that this "new virus" is actually Influenza Type A (which is the one my daughter got this past winter). The reason it's making the headlines is because it's a new strain of it. As many of you know, new strains of influenza make it into the U.S. every year and that is why they have to change the Flu Shot to keep up with it. Of course, it doesn't always work. (We won't get started on that discussion right now.) So.... basically we should ALL treat this like we would the Flu. We don't need to be getting all worked up about the word "pandemic" because that just makes it sound like that couldn't happen with any other Flu... it can!
The biggest defense against the Flu is hand washing and covering your mouth when you sneeze. I am so tired of people just using hand sanitizer. That's okay if you have no other choice, but washing your hands really well with soap is the better choice. The next thing you need to do is STAY HOME if you're sick! Don't send your child to school on Tylenol (I know we all have done it in the past... don't pretend you haven't). Now is definitely not the time to do that. They have already reported over 400 schools closing around the United States alone. (I am so glad we are near the end of the school year around here.)
The following is the tracker for the Flu and you can check on the entire world. It's very interesting.
http://maps.google.com/maps/ms?ie=UTF8&hl=en&t=p&msa=0&msid=106484775090296685271.0004681a37b713f6b5950&ll=32.639375,-110.390625&spn=15.738151,25.488281&z=5
Okay... so now on to the vaccine issue at stake here.... I found some really good information from the Associated Press online concerning this topic. I normally would post the link, but the information is just too good that I MUST share it with you all:
*****************************************
WHO will take vaccine gamble with swine flu
By MARIA CHENG – 2 hours ago
LONDON (AP) — When World Health Organization officials ask vaccine manufacturers to start producing vaccine to fight swine flu in a few weeks, they will be taking a calculated risk.
Flu vaccine companies can only make one vaccine at a time: seasonal flu vaccine or pandemic vaccine. Production takes months and it is impossible to switch halfway through if health officials make a mistake.
While some countries like the United States may be better prepared than others — American officials say production for next year's vaccine batch is so advanced they're nearly finished — the situation for many other countries is unknown.
About 70 percent of the world's flu vaccines are made in Europe, and WHO is trying to figure out how many doses of seasonal flu vaccine remain worldwide before asking vaccine manufacturers to start pumping out pandemic vaccine instead.
"It's a big decision...We've never done this before," said Marie-Paule Kieny, director of WHO's Initiative for Vaccine Research.
Kieny said the decision would be like guessing which vaccine the world will need most, but that WHO would try to hedge its bets by tallying existing seasonal flu vaccine stocks.
"We are gambling whether or not we will have enough seasonal vaccine, but it will not be an 'either-or' situation," she said.
Vaccine makers can make limited amounts of both seasonal flu vaccine and pandemic vaccine — though not at the same time — but they cannot make massive quantities of both because that exceeds capacity.
The impending decision to make pandemic vaccine will also complicate matters for countries in the southern hemisphere, where the flu season is just starting.
WHO usually makes recommendations about which seasonal flu strains should go into next year's southern hemisphere flu vaccine in September. But if vaccine manufacturers are already making pandemic vaccine in the fall, that will mean fewer doses of flu vaccine for people in the southern hemisphere.
Regular flu kills between 250,000 to 500,000 people worldwide every year. So far, swine flu appears relatively mild, except in Mexico. Until experts know how contagious and deadly the virus is, they won't know how many people actually need to be vaccinated. If it remains mild, it's possible many people won't need a shot.
But if swine flu evolves into a more deadly strain, more shots may be needed to protect wider swathes of the population. Another possible complication is that the pandemic vaccine will be made using the strain available now; whether that will work if the virus mutates isn't certain.
At the moment, WHO has a bit of breathing space. The key component for the pandemic vaccine, the "seed stock" from the swine flu virus, will not be available for a few weeks.
WHO has already put major vaccine makers on alert they may be asked to switch to making pandemic vaccine soon. According to Chris Viehbacher, chief executive of Sanofi-Aventis, Europe's biggest vaccine maker, his scientists are "working around the clock" on preparations for making a swine flu vaccine for when WHO comes calling.
But they too are waiting for more information. "It is premature to forecast how many doses of swine flu vaccine we could produce," Viehbacher said, noting the company needs to see how much antigen, the active ingredient in a vaccine, is required for each shot. If all goes well, the first doses should be available several months after production begins.
In the U.S., the government hasn't yet decided what to order. "It would all depend on how the outbreaks and the emergency unfolds," said Dr. Ruben Donis of the Centers for Disease Control and Prevention, who is heading the U.S.' vaccine work.
Vaccine makers have a few options when it comes to making pandemic vaccine. They could add the pandemic strain to the regular vaccine, but adding that extra strain reduces the number of shots you can make. Manufacturers might also use adjuvants, components used to stretch a vaccine's active ingredient.
Recent work on H5N1 vaccines, the bird flu strain many thought would ignite the next pandemic, may also help. John Treanor, a vaccines expert at the University of Rochester said that adjuvants developed during H5N1 research may come in handy now.
He said public health officials were indeed facing a vaccine dilemma. "There is only a certain amount of capacity for vaccine manufacturing," he said. "One has to make some well-reasoned choices, sometimes based on incomplete information."
****************************************
Where do I begin? I can't do it right now. I will have to write about this article at a later date because there are just too many issues at stake here. Plus, I want the time for it to sink in.
****************************************
Wednesday, April 29, 2009
Motherhood... a Divine Calling
With Mother's Day just around the corner I thought I would talk about what motherhood means to me. Today I met a woman who tried to conceive for 20 years!! She decided not to try medical intervention. She told me that she felt that if it was meant to be then it would happen. She decided to leave it in the Lord's hands. Well... here she was in her 40's and she finally got pregnant. What an inspiration! How many of us take this gift for granted?
I was blessed with four wonderful pregnancies and consequently four beautiful children. Although my first pregnancy and delivery were not a walk in the park, overall it was a positive experience and I delivered a healthy baby boy. That's all a mother asks for in the end. My husband and I were blessed with good fertility and did not have any problems getting pregnant. That is something I never took for granted. It seems like all my life I have been surrounded by friends who have trouble getting pregnant and I never understood it. It made me mad to see these wonderful women who would make awesome parents not be given the opportunity. It made me even MORE mad to see people who did not even want kids get pregnant before my eyes. That was probably the hardest thing for me to understand.
Motherhood is a divine calling and a blessing given to women. We are born with the divine nature that enables us to be loving, kind, gentle, and nurturing with our babies. I see my daughter, who is only 6, already wrapping her dolls in blankets and doing other things that the boys definitely don't do. The differences are so evident. Even those women who don't have children of their own will be given the opportunity to be a part of a child's life. It might be a niece or nephew, a neighborhood kid, or perhaps a child from church. They will have a hand in raising that child and giving them all the love and support that they have to give.
I have a friend who recently adopted a beautiful baby boy (this will make it her second son) and in many ways I think this will be such a special Mother's Day for her. I have to admit that I was a bit jealous seeing her with such energy and being able to enjoy those tender first days and weeks that you can't ever get back. I just remember how tired I was after each of my babies and it definitely took me some time to recuperate. Adoption is definitely one of the greatest gifts someone can give. It's an unselfish act and takes so much courage and love. I can not imagine having to face such a decision. However, I am so glad that so many do and that moms like my friend are given this precious gift and opportunity to be a mother. I know in my heart that these babies were sent from heaven and it doesn't matter HOW they got here, they BELONG here and one only has to see the miracle of adoption to see it. I am so happy for my friend, and I know that she is going to be such a wonderful mom to him.
This post is dedicated to all the wonderful moms out there who don't think twice about putting others before themselves.... who dedicate their time and effort in making sure that their kids are fed, bathed, taught, and loved.... who juggle home, school, spouses, and such.... who wear so many hats I can't even name them all.... and lastly, who are the unsung heroes of the world!!!
*****************************
Being a mother is the hardest
job there is....you don't get
a paycheck, praise, or even a
break....but I wouldn't trade
it for anything in the world!
*****************************
I was blessed with four wonderful pregnancies and consequently four beautiful children. Although my first pregnancy and delivery were not a walk in the park, overall it was a positive experience and I delivered a healthy baby boy. That's all a mother asks for in the end. My husband and I were blessed with good fertility and did not have any problems getting pregnant. That is something I never took for granted. It seems like all my life I have been surrounded by friends who have trouble getting pregnant and I never understood it. It made me mad to see these wonderful women who would make awesome parents not be given the opportunity. It made me even MORE mad to see people who did not even want kids get pregnant before my eyes. That was probably the hardest thing for me to understand.
Motherhood is a divine calling and a blessing given to women. We are born with the divine nature that enables us to be loving, kind, gentle, and nurturing with our babies. I see my daughter, who is only 6, already wrapping her dolls in blankets and doing other things that the boys definitely don't do. The differences are so evident. Even those women who don't have children of their own will be given the opportunity to be a part of a child's life. It might be a niece or nephew, a neighborhood kid, or perhaps a child from church. They will have a hand in raising that child and giving them all the love and support that they have to give.
I have a friend who recently adopted a beautiful baby boy (this will make it her second son) and in many ways I think this will be such a special Mother's Day for her. I have to admit that I was a bit jealous seeing her with such energy and being able to enjoy those tender first days and weeks that you can't ever get back. I just remember how tired I was after each of my babies and it definitely took me some time to recuperate. Adoption is definitely one of the greatest gifts someone can give. It's an unselfish act and takes so much courage and love. I can not imagine having to face such a decision. However, I am so glad that so many do and that moms like my friend are given this precious gift and opportunity to be a mother. I know in my heart that these babies were sent from heaven and it doesn't matter HOW they got here, they BELONG here and one only has to see the miracle of adoption to see it. I am so happy for my friend, and I know that she is going to be such a wonderful mom to him.
This post is dedicated to all the wonderful moms out there who don't think twice about putting others before themselves.... who dedicate their time and effort in making sure that their kids are fed, bathed, taught, and loved.... who juggle home, school, spouses, and such.... who wear so many hats I can't even name them all.... and lastly, who are the unsung heroes of the world!!!
*****************************
Being a mother is the hardest
job there is....you don't get
a paycheck, praise, or even a
break....but I wouldn't trade
it for anything in the world!
*****************************
Wednesday, April 22, 2009
Wilson's Disease Diet That Works
I thought it was time to talk about Wilson's again. Since it seems like things are going well for our daughter I thought I would share what we are doing and save some of you the hassle of months and months of research. I am definitely willing to share what I have found. :)
The first thing you need to do is educate yourself on what foods are high in copper. Since I have a medical background I can understand some things that perhaps others can't as far as units of measurement, metabolic pathways, and other things I sometimes take for granted. However, I have found numerous sites that offer tables, charts, and other important information that can be very useful in making it all make sense. The important thing to remember is that sometimes it's not the food that contains the copper, but the way it is processed that makes it dangerous. We were fortunate to get a diagnosis so early and so my daughter has made a smooth transition. She treats anything with chocolate, mushrooms, dried fruit, etc... like poison.
I want to refer you to the mayo clinic website. That is the first site I visited and it has a lot of information concerning Wilson's Disease. This is the link:
http://www.mayoclinic.com/health/wilsons-disease/DS00411
Another website that is fabulous:
http://www.gicare.com/Diets/Copper-Restriction.aspx
yet another:
http://www.wilsonsdisease.org/copper.html
I could go on, but I think you get the idea. There are tons of websites out there and they all have valuable information. All you have to do is google "Wilson's Disease" or "Low Copper Diet" and you will find many more.
One thing I am going to do is meet with a nutritionist soon. I will update you all on what I find out. I think that it's important to make sure that my daughter has a well-balanced diet not lacking in essential nutrients and vitamins.
This is the diet we are currently following: we avoid certain foods such as chocolate, leafy green vegetables such as spinach, mushrooms, nuts except peanuts, beans, shellfish, organ meats or anything that might contain it such as cheap hotdogs, Ovaltene, instant breakfast or "meal-replacement" drinks, whole wheat products, and we refer to charts often if we are unsure.
The good and bad about this condition is that since there isn't an "allergic" reaction to these foods it is easy for the parent AND child to forget or "break the rules" once in a while. I have to admit that on special occasions I sometimes will let her have a bite of chocolate or have a chocolate chip cookie. I don't want her to rebel and go overboard in the future. The main reason I have been so strict in following the diet is because I know how addictive certain foods can be. It's easier for her if she learns now to retrain her palate. I can't even imagine if I had to avoid chocolate. It's one of my favorite things in life and it's a drug of sorts for PMS and other conditions. However, I have learned some substitutions such as carob for her. She loves carob malt balls. They are a little treat we get for her when she is craving chocolate.
Right now my daughter is not on any medicine. I know that zinc seems to work for some people who have trouble controlling the copper absorption. That is something to definitely check into. Another thing that is worth checking is the copper level in the tap water. They don't recommend consuming more than 100 mcg/L of copper. You can either look at the water report or call your water company and get your water tested. We are lucky in our area to have good water with low copper levels. However, we don't take chances and we use only filtered water for drinking. It's yet another precaution that doesn't require too much effort and it's worth the time.
I will try and remember to update you all on the nutritionist information. I am eager to find out if we are lacking in any vitamins or nutrients for our daughter. She is doing great and is growing up so tall. I am optimistic that she will continue to be healthy. Her liver enzymes are improving and I like the fact that for now we are not having to take any drugs for her condition. I am so thankful for the prayers and best wishes on her behalf. They are definitely being heard. I am also thankful for the inspiration and dedication of the doctors we have today.
*******************************
Wilson's Disease is not curable,
but it is definitely treatable.
*******************************
The first thing you need to do is educate yourself on what foods are high in copper. Since I have a medical background I can understand some things that perhaps others can't as far as units of measurement, metabolic pathways, and other things I sometimes take for granted. However, I have found numerous sites that offer tables, charts, and other important information that can be very useful in making it all make sense. The important thing to remember is that sometimes it's not the food that contains the copper, but the way it is processed that makes it dangerous. We were fortunate to get a diagnosis so early and so my daughter has made a smooth transition. She treats anything with chocolate, mushrooms, dried fruit, etc... like poison.
I want to refer you to the mayo clinic website. That is the first site I visited and it has a lot of information concerning Wilson's Disease. This is the link:
http://www.mayoclinic.com/health/wilsons-disease/DS00411
Another website that is fabulous:
http://www.gicare.com/Diets/Copper-Restriction.aspx
yet another:
http://www.wilsonsdisease.org/copper.html
I could go on, but I think you get the idea. There are tons of websites out there and they all have valuable information. All you have to do is google "Wilson's Disease" or "Low Copper Diet" and you will find many more.
One thing I am going to do is meet with a nutritionist soon. I will update you all on what I find out. I think that it's important to make sure that my daughter has a well-balanced diet not lacking in essential nutrients and vitamins.
This is the diet we are currently following: we avoid certain foods such as chocolate, leafy green vegetables such as spinach, mushrooms, nuts except peanuts, beans, shellfish, organ meats or anything that might contain it such as cheap hotdogs, Ovaltene, instant breakfast or "meal-replacement" drinks, whole wheat products, and we refer to charts often if we are unsure.
The good and bad about this condition is that since there isn't an "allergic" reaction to these foods it is easy for the parent AND child to forget or "break the rules" once in a while. I have to admit that on special occasions I sometimes will let her have a bite of chocolate or have a chocolate chip cookie. I don't want her to rebel and go overboard in the future. The main reason I have been so strict in following the diet is because I know how addictive certain foods can be. It's easier for her if she learns now to retrain her palate. I can't even imagine if I had to avoid chocolate. It's one of my favorite things in life and it's a drug of sorts for PMS and other conditions. However, I have learned some substitutions such as carob for her. She loves carob malt balls. They are a little treat we get for her when she is craving chocolate.
Right now my daughter is not on any medicine. I know that zinc seems to work for some people who have trouble controlling the copper absorption. That is something to definitely check into. Another thing that is worth checking is the copper level in the tap water. They don't recommend consuming more than 100 mcg/L of copper. You can either look at the water report or call your water company and get your water tested. We are lucky in our area to have good water with low copper levels. However, we don't take chances and we use only filtered water for drinking. It's yet another precaution that doesn't require too much effort and it's worth the time.
I will try and remember to update you all on the nutritionist information. I am eager to find out if we are lacking in any vitamins or nutrients for our daughter. She is doing great and is growing up so tall. I am optimistic that she will continue to be healthy. Her liver enzymes are improving and I like the fact that for now we are not having to take any drugs for her condition. I am so thankful for the prayers and best wishes on her behalf. They are definitely being heard. I am also thankful for the inspiration and dedication of the doctors we have today.
*******************************
Wilson's Disease is not curable,
but it is definitely treatable.
*******************************
Thursday, April 16, 2009
Confessions of an Autism Community
I got this idea from a show I watched on television. There is a woman who wrote a book about confessions from mothers and what they REALLY think and feel. I thought it was very enlightening and therapeutic. I thought I would do the same thing except post some things I have heard others say or things I have felt myself (keeping it all anonymous of course) so that everyone can look at it and see that you're not alone and that it's okay to vent sometimes. :)
..............................
"Sometimes I wish I could go to jail for a day to get a break."
..............................
"I love my children to death.... but sometimes I wish I would have waited longer to have kids."
..............................
"My child is so overweight that I feel ashamed and guilty."
..............................
"I know people judge me by my children's actions and that makes me so mad."
..............................
"Sometimes I go into the bathroom and cry."
..............................
"Most days I feel overwhelmed and unappreciated."
..............................
"I have to admit that there are times when I wonder what it would be like to have normal children."
..............................
"Why can't everyone see that I am just trying my best to raise my children in a world that can't understand autism!"
..............................
"I wish that my best friends could wear my shoes just for a day."
..............................
"I love looking at the world through the eyes of my child."
..............................
"I have sent my child to school drugged with Tylenol and/or decongestant before."
..............................
"I have to admit that I cringe when others tell me that their 'normal' children do the same thing."
..............................
"Maybe I'm a bit too touchy, but when my son says hello and it is not reciprocated I get very upset."
..............................
"One of my worst fears is that I will die and leave behind my autistic child with someone who just wouldn't understand him like I do."
..............................
Those are just a few of the things I could recall. Feel free to "vent" if you want. I think it's important for all moms to realize that we are all trying the best that we can to raise our children in this crazy world of ours. No one feels perfect. We all have our struggles we deal with on a daily basis. Parents of children with special needs have some of the same feelings and struggles. However, it's amplified by our own internal voices and insecurities. My prayer is that those things will be reconciled and that we can focus on what's REALLY important.
******************************************
I know you and you know me
We are as different as the sun and the sea
I know you and you know me
And that's the way it is supposed to be.
(Primary Song: "We Are Different")
******************************************
..............................
"Sometimes I wish I could go to jail for a day to get a break."
..............................
"I love my children to death.... but sometimes I wish I would have waited longer to have kids."
..............................
"My child is so overweight that I feel ashamed and guilty."
..............................
"I know people judge me by my children's actions and that makes me so mad."
..............................
"Sometimes I go into the bathroom and cry."
..............................
"Most days I feel overwhelmed and unappreciated."
..............................
"I have to admit that there are times when I wonder what it would be like to have normal children."
..............................
"Why can't everyone see that I am just trying my best to raise my children in a world that can't understand autism!"
..............................
"I wish that my best friends could wear my shoes just for a day."
..............................
"I love looking at the world through the eyes of my child."
..............................
"I have sent my child to school drugged with Tylenol and/or decongestant before."
..............................
"I have to admit that I cringe when others tell me that their 'normal' children do the same thing."
..............................
"Maybe I'm a bit too touchy, but when my son says hello and it is not reciprocated I get very upset."
..............................
"One of my worst fears is that I will die and leave behind my autistic child with someone who just wouldn't understand him like I do."
..............................
Those are just a few of the things I could recall. Feel free to "vent" if you want. I think it's important for all moms to realize that we are all trying the best that we can to raise our children in this crazy world of ours. No one feels perfect. We all have our struggles we deal with on a daily basis. Parents of children with special needs have some of the same feelings and struggles. However, it's amplified by our own internal voices and insecurities. My prayer is that those things will be reconciled and that we can focus on what's REALLY important.
******************************************
I know you and you know me
We are as different as the sun and the sea
I know you and you know me
And that's the way it is supposed to be.
(Primary Song: "We Are Different")
******************************************
Thursday, April 9, 2009
Autism Society of America Walk
Today I went to an Autism Walk in my city with a friend who also has a child in the "autism spectrum". I have to admit that I was rather disappointed in the numbers that came. I was expecting crowds of people, and I think there might have been less than 100 people there. The cost was $30 and we got a cute shirt with the Frog mascot on it. I was glad to see families there and there were a few people from our school. I wish there would have been more. How can we expect support if WE don't support one another. That's the main motivation for this post.
Tomorrow they are meeting with legislators to discuss the need for more funding for Autism research. It's important that we all do what we can to let our representatives know that we can no longer be ignored! The numbers are rising each day and some still say there is not an epidemic. They want to dismiss it as "an increase in awareness and testing".... that is so wrong! Let's say for a moment that the numbers are increasing because of better screening methods. If that's the case, then show me all the adults with autism! Well... no matter what they say, the numbers are still increasing and so we STILL need to do something about it. Right???? It's insane to say that we aren't doing anything because there is no proof that the numbers are actually increasing. For the record: the number of autism cases are on the rise and no matter what the cause is, it definitely has MY attention.
http://www.autism-society.org
April is Autism Awareness Month and I wanted to make sure to post the link to useful information. The link above has wonderful ideas and suggestions of things you can do to support the cause. I hope you take the time to check it out.
The formal symbol for Autism Society is the puzzle piece. You can purchase shirts, bracelets, and other products online. The money they make goes towards increasing public awareness, research, and cost of advertising. The important thing to remember is that even if you don't have a child with autism, chances are that you will know someone or that your child will know someone who does. The statistics are 1:150 and some say it's actually more prevalent than that.
The first step towards finding an answer and/or a cure for Autism is awareness. It's a real condition that affects so many people. It's not something that goes away, although the symptoms seem to improve in some cases. I believe that some parents feel like giving up. I don't want that to happen!!! We can't just give up now. We need to fight harder than ever. We have to do it for our children, our grandchildren, and our posterity.
***************************
Now is the time to fight!!!
***************************
Tomorrow they are meeting with legislators to discuss the need for more funding for Autism research. It's important that we all do what we can to let our representatives know that we can no longer be ignored! The numbers are rising each day and some still say there is not an epidemic. They want to dismiss it as "an increase in awareness and testing".... that is so wrong! Let's say for a moment that the numbers are increasing because of better screening methods. If that's the case, then show me all the adults with autism! Well... no matter what they say, the numbers are still increasing and so we STILL need to do something about it. Right???? It's insane to say that we aren't doing anything because there is no proof that the numbers are actually increasing. For the record: the number of autism cases are on the rise and no matter what the cause is, it definitely has MY attention.
http://www.autism-society.org
April is Autism Awareness Month and I wanted to make sure to post the link to useful information. The link above has wonderful ideas and suggestions of things you can do to support the cause. I hope you take the time to check it out.
The formal symbol for Autism Society is the puzzle piece. You can purchase shirts, bracelets, and other products online. The money they make goes towards increasing public awareness, research, and cost of advertising. The important thing to remember is that even if you don't have a child with autism, chances are that you will know someone or that your child will know someone who does. The statistics are 1:150 and some say it's actually more prevalent than that.
The first step towards finding an answer and/or a cure for Autism is awareness. It's a real condition that affects so many people. It's not something that goes away, although the symptoms seem to improve in some cases. I believe that some parents feel like giving up. I don't want that to happen!!! We can't just give up now. We need to fight harder than ever. We have to do it for our children, our grandchildren, and our posterity.
***************************
Now is the time to fight!!!
***************************
Thursday, April 2, 2009
Angels and Demons
Right now I am reading a book entitled "Angels and Demons" and it's written by the same author as The DaVinci Code, which I thoroughly enjoyed. In the book they mention how in the old days they would kill people who called themselves "scientists" and taught things that contradicted principles taught in church. These people were considered crazy. Just imagine for a second a world in which we still believed the world was flat, or one in which the sun was NOT the center of the universe, or perhaps that illnesses were a direct result of God's wrath. Those are things that used to be the "norm" in thinking. Of course, NOW we know all that is not true.
Reading the book made me think about all the changes and modern-day miracles that have been discovered and/or invented. It also made me feel sad about some of the changes that we are experiencing that aren't so good. There are so many things that are going through my mind right now. The first thing is the rise in mental illness in children. The other thing is the changing of medicine. Lastly, is the breaking down of the family unit as we know it today. I will first talk about the rise in mental illnesses in children. Why is it on the rise? That is definitely a good question we need to ask. All you have to do is turn on the t.v. and you will be bombarded by commercials for medications to treat depression, ADD/ADHD, anxiety, etc....the list is endless. It seems like every year we hear more and more of mental illness with children and that kind of scares me. What is going on? What's different about today that is making it harder for parents and kids? The obvious things to me are entertainment, food, and amount of exercise. The other things I thought about were morals taught at home, stable home environment, time spent with family and friends, school, and perhaps the music we listen to. All those things contribute to the type of person we become. It also can explain why there are so many problems with children today. Can that alone explain the rise? I don't think so. There are definitely environmental factors at play.
How is medicine changing? Well... instead of learning to cope with problems we are encouraged by the medical community to pop a pill instead. Instead of learning what the root of our symptoms are, we are given medicine. Instead of preventing illness we are sometimes causing it by the way we live. All these things are so frustrating to me. It seems logical to me that they should teach about alternative medicine in medical school, but they clearly don't. It's considered "quackery" and basically dismissed by doctors. I think if something works, then why not learn more about it? If I was a doctor and my patients were telling me that something was working for them I would totally encourage it and possibly suggest it to future patients as an alternative. However, it's been my experience that there are a lot of narrow-minded individuals in the medical community. As long as the pharmaceutical companies continue to brainwash the doctors and "buy" them with extravagant gifts this is not going to change anytime soon.
The last thing and most important change I have noticed is the breakdown of the family unit. Not only are people waiting longer to have kids, but it seems like a lot of parents don't take parenting very seriously. It's rare to see a family sitting together having a meal these days. That is so sad. I know a lot of mothers who choose to work just to maintain a lavish lifestyle. I think a child would much rather have a mother's time than the latest styles of clothing or electronic game that just came out. This year I am a Room Parent for my daughter's kindergarten class and it's so sad to see how many parents don't take their child's education seriously. It's almost like they expect others to raise their children and educate them as well. The schools are not a substitute for what should be taught in the home. As a matter of fact, I have learned the hard way that I have to work much harder these days to undo what they ARE taught in schools sometimes..... it's not always good.
Sometimes I feel like a pioneer in my own right as it pertains to the medical care of members of my family. There are a few people in my life that totally agree with my thought process and provide more insight. There are others that totally disagree and feel I am insane. At times I feel a bit like the scientists of old who tried to prove their theories and ideas but found a great deal of resistance. In my heart I am a scientist. Although I don't work full-time in a laboratory anymore, I still have it in my blood. I have a innate curiosity about how things work. My laboratory has morphed into my home office and the computer. It includes books, sessions with doctors, and the laboratory results I have organized into files. I also have witnesses and testimony of other parents. It has been a very positive experience for me. It will be my life-long journey and although I don't get a paycheck, I do get a much greater reward..... seeing my children happy, healthy, and strong.
***************************
Sometimes truth is stranger
than fiction.
***************************
Reading the book made me think about all the changes and modern-day miracles that have been discovered and/or invented. It also made me feel sad about some of the changes that we are experiencing that aren't so good. There are so many things that are going through my mind right now. The first thing is the rise in mental illness in children. The other thing is the changing of medicine. Lastly, is the breaking down of the family unit as we know it today. I will first talk about the rise in mental illnesses in children. Why is it on the rise? That is definitely a good question we need to ask. All you have to do is turn on the t.v. and you will be bombarded by commercials for medications to treat depression, ADD/ADHD, anxiety, etc....the list is endless. It seems like every year we hear more and more of mental illness with children and that kind of scares me. What is going on? What's different about today that is making it harder for parents and kids? The obvious things to me are entertainment, food, and amount of exercise. The other things I thought about were morals taught at home, stable home environment, time spent with family and friends, school, and perhaps the music we listen to. All those things contribute to the type of person we become. It also can explain why there are so many problems with children today. Can that alone explain the rise? I don't think so. There are definitely environmental factors at play.
How is medicine changing? Well... instead of learning to cope with problems we are encouraged by the medical community to pop a pill instead. Instead of learning what the root of our symptoms are, we are given medicine. Instead of preventing illness we are sometimes causing it by the way we live. All these things are so frustrating to me. It seems logical to me that they should teach about alternative medicine in medical school, but they clearly don't. It's considered "quackery" and basically dismissed by doctors. I think if something works, then why not learn more about it? If I was a doctor and my patients were telling me that something was working for them I would totally encourage it and possibly suggest it to future patients as an alternative. However, it's been my experience that there are a lot of narrow-minded individuals in the medical community. As long as the pharmaceutical companies continue to brainwash the doctors and "buy" them with extravagant gifts this is not going to change anytime soon.
The last thing and most important change I have noticed is the breakdown of the family unit. Not only are people waiting longer to have kids, but it seems like a lot of parents don't take parenting very seriously. It's rare to see a family sitting together having a meal these days. That is so sad. I know a lot of mothers who choose to work just to maintain a lavish lifestyle. I think a child would much rather have a mother's time than the latest styles of clothing or electronic game that just came out. This year I am a Room Parent for my daughter's kindergarten class and it's so sad to see how many parents don't take their child's education seriously. It's almost like they expect others to raise their children and educate them as well. The schools are not a substitute for what should be taught in the home. As a matter of fact, I have learned the hard way that I have to work much harder these days to undo what they ARE taught in schools sometimes..... it's not always good.
Sometimes I feel like a pioneer in my own right as it pertains to the medical care of members of my family. There are a few people in my life that totally agree with my thought process and provide more insight. There are others that totally disagree and feel I am insane. At times I feel a bit like the scientists of old who tried to prove their theories and ideas but found a great deal of resistance. In my heart I am a scientist. Although I don't work full-time in a laboratory anymore, I still have it in my blood. I have a innate curiosity about how things work. My laboratory has morphed into my home office and the computer. It includes books, sessions with doctors, and the laboratory results I have organized into files. I also have witnesses and testimony of other parents. It has been a very positive experience for me. It will be my life-long journey and although I don't get a paycheck, I do get a much greater reward..... seeing my children happy, healthy, and strong.
***************************
Sometimes truth is stranger
than fiction.
***************************
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